Eleven months ago tomorrow our long awaited, much loved twins arrived.
Eleven months ago our hearts filled with joy and then shattered with sorrow.
People who we thought were our friends turned on us when they realized we were unwilling to allow them to treat the death of our son as an inconvenience to their business.
People who we mistakenly assumed would blame us for our son's death have surrounded us with love and support.
A lot has changed in the last eleven months.
Our beautiful, vivacious daughter has blossomed as the health issues related to the medical neglect of her surrogate and the consequences of her premature birth have slowly begun to resolve. She starts every morning with a smile. Her first word was "Yay!" She now says, momma, daddy-ji and didi (sister). She loves music, adores jewelry and waves to everyone we meet.
Mr. Q has flourished in his role as big brother. Having a little sister has helped him in ways that we never envisioned.
I no longer feel as alone as I did in the first few months after losing Johnny. Some incredibly wise, strong and beautiful women (I'm looking at you, JT and CR) have allowed me to rage when I needed to, cry when I needed to and have never told me to "get over" it.
Some things remain the same:
We are just as devastated by Johnny's death as we were the day he died. Perhaps even more so as the truth about his life and death has become more clear. To anyone thinking of commenting that it's time for us to "get over it", I truly hope you never have are in the position to know just how wrong you are to say this to parents who have lost a child.
We are still being threatened, harassed and defamed by people within the international surrogacy community for speaking out about the dangers that this unregulated multi-million dollar industry presents to babies, to surrogates and to intended parents.
The organization which purports itself as advocating for best practices in international surrogacy still promotes agents/agencies, facilitators and clinics with well documented and known problems.
Despite story after story of devastated intended parents, suffering surrogates and babies put in harm's way, agents and facilitators continue to promote themselves as experts in the legal and medical systems of countries they have only visited briefly.
How many babies will have to die? How many families will be left bankrupted and devastated, their dreams of a family shattered? How many surrogates will have to suffer immeasurably? When will these "surrogacy cowboys" recognize that while they may not be legally accountable for the suffering they profit from, the reality is that they are morally and ethically complicit in it continuing.
Lauren Hill said it best, "Never underestimate those who you scar, cause karma, karma comes back to you hard."